Photo by Nate King.

Chelsey R. Carter, PhD, MPH

Director and Principal Investigator

Chelsey R. Carter is an Assistant Professor of Public Health in the Department of Social and Behavioral Sciences at Yale School of Public Health with a secondary appointment in the Department of Anthropology. She is a Black feminist anthropologist of medicine, public health, and race from St. Louis, Missouri. Her scholarship examines the relationship(s) between social determinants of health (e.g., anti-Black racism, socioeconomic status, gender) and neurodegenerative diseases such as amyotrophic lateral sclerosis (ALS) and motor neuron diseases (MND). Carter has a background in anthropology and public health, with specific training and expertise in ethnographic research, qualitative methodologies, and applied public health interventions. Her most recent research on race and ALS informs her first book project, tentatively titled, Finding the Forgotten: Race, Bias, and Care in the World of ALS. This book centers on the experiences of Black people living with ALS (and their families), scientific knowledge production, and how embodied inequality impacts diagnosis, treatment, and engagement in clinical trials.

Research Team

  • Maame-Owusua Boateng, MPH

    POSTGRADUATE RESEARCH ASSOCIATE
    RESEARCH COORDINATOR

  • Omar Guerrero

    GRADUATE RESEARCH ASSISTANT

  • Asia Beason

    UNDERGRADUATE RESEARCH ASSISTANT

  • Devin Brown

    GRADUATE RESEARCH ASSISTANT

  • Ashley Nurse

    DOCTORAL STUDENT

  • Christina Pantzer

    GRADUATE RESEARCH ASSISTANT